Today I watched a hearing about whether or not a woman in her 40s is dead. She was declared dead at 11.45 on Thursday 10 March 2022, following brain stem death testing. The reason the doctors have continued to treat the patient and the reason the Trust has applied to court is that the family has opposed withdrawal of ventilation (and other treatments) and has asked for a private second opinion.
Tag Archives: Transparency
Challenging behaviours? The importance of language
Referring to NC urinating in his bedroom as a“challenging behaviour” does not (in and of itself) acknowledge the potential medical and social issues that have led to this action. It gives no insight into his character or the unique circumstances that have led up to the current situation. investigations. In using this term, his agency is diminished. It is instead seen as combative force against the agency of the medical staff attempting to assess him.
Introducing an upcoming hearing: Is a kidney transplant in his best interests?
A 17y/o with kidney disease, learning disability, autism and ADHD is at the centre of a court decision about a kidney transplant. Bonnie Venter (@TheOrganOgress) will be reporting from court over the next 4 days.
Delay in finding a suitable placement for a young adult with Prader-Willi syndrome
By Aura Mackintosh Bamber, 22 February 2022 For any child’s family, a diagnosis of Prader-Willi Syndrome brings with it a number of responsibilities and worries that are involved in properly caring for and managing this complex disorder. These worries are only exacerbated when a decision is made to deprive that child of their liberty inContinue reading “Delay in finding a suitable placement for a young adult with Prader-Willi syndrome”
Prader-Willi Syndrome and Transparency
A young man with Prader-Willi Syndrome was at the centre of a hearing before Theis J. I can only tell you this because journalist Brian Farmer and I made submissions to the judge saying that we should be allowed to report it and she eventually agreed.
A response to ‘The politics of the pandemic…’: COVID-vaccination of a disabled man
Let me be clear: I also do not know where the evidence points, because the evidence is not reliably available to examine. I do not know this because the supremacy of evidence-based medicine has been lost, which is personally devastating, as I wonder what will happen to evidence, debate, scientific method and freedom to explore uncertainty.
A home not a hospital: Service delivery goals for PH
reflect on how having some level of oversight from a professional who is somewhat independent, and who can initiate communication with separate bodies (i.e. care home management, local authority, health commissioning) can be pivotal in ‘making things happen’ for P, that wouldn’t have necessarily happened without such intervention.
Why members of the public don’t ask earlier to observe hearings (and what to do about it)
udges have suggested repeatedly over the last 18 months – to me, and to other observers – that we should ask to observe hearings in a timely fashion, giving judges (and advocates and court staff) more warning that we want to be there in court.
Cross-examining a GP in a COVID-vaccination hearing
By Celia Kitzinger, 4th February 2022 Editorial note: The judgment is published here: A CCG v. DC & MC & AC [2022] EWCOP 2. The parents subsequently appealed the decision, and the appeal was heard by Hayden J MC & Anor v A CCG & Anor [2022] EWCOP 20. (See postscript to this blog forContinue reading “Cross-examining a GP in a COVID-vaccination hearing”
Not quite there yet: My first three attempts to observe a Court of Protection hearing
The Judge then went on to say that as I had only requested access at 10.50pm the evening before, she had not had time to go through formalities. She then referred to Claire Martin, another public observer (and core member of the Open Justice Court of Protection Project) who was also observing the proceedings and requested that we ‘kindly leave’. So that was that. Abrupt as it was, I duly obliged, and felt slightly down beaten at this point.
Promoting Open Justice in the Court of Protection 