By Celia Kitzinger, 6th May 2022 I had no idea what this hearing would be about. I picked it at random because I had an hour free at 10am on the morning of Friday 22nd April, and thought I could profitably use it to perform my civic duty of supporting open justice in the Court of Protection. Here’sContinue reading “Challenges in observing a (remote) hearing at Swansea Civil Justice Centre: Capacity for contact and sexual relations”
Tag Archives: Transparency
Refusing to eat and declining a feeding tube: Capacity at issue
By Celia Kitzinger, 21st April 2022 The hearing concerned an application from an NHS Trust (represented by David Lawson) to insert a PEG-J tube under general anaesthetic and then to deliver clinically assisted nutrition and hydration (CANH) to a young woman (P) who was admitted to hospital having fractured her femur and is now refusing to eat. She’sContinue reading “Refusing to eat and declining a feeding tube: Capacity at issue”
The value of observing a case management hearing in the Court of Protection
By Helen Moizer, 7th April 2022 The value of observing a case management hearing in the Court of Protection. When I observed a Court of Protection hearing for the first time, I did not know what I was entering into or what to expect. Despite it being a video hearing link, I still felt apprehensiveContinue reading “The value of observing a case management hearing in the Court of Protection”
Two years on: A postscript to “Remote justice”
What families mean by “gravitas” (dignity, seriousness, solemnity) does not in fact reside in court architecture, coats of arms, wigs and robes, or rituals of address and behaviour. In my experience, these external manifestations of “justice” can sometimes seem rather ridiculous, and the “performance” element of the courtroom can alienate lay people and distract everyone from the serious business at hand. Rather, the “gravitas” families appreciate is a quality of attention, a focus, a willingness to engage, in depth, with the medico-legal and ethical issues before the court.
Withdrawing treatment after brain-stem death: A case in the Family Division
Today I watched a hearing about whether or not a woman in her 40s is dead. She was declared dead at 11.45 on Thursday 10 March 2022, following brain stem death testing. The reason the doctors have continued to treat the patient and the reason the Trust has applied to court is that the family has opposed withdrawal of ventilation (and other treatments) and has asked for a private second opinion.
Challenging behaviours? The importance of language
Referring to NC urinating in his bedroom as a“challenging behaviour” does not (in and of itself) acknowledge the potential medical and social issues that have led to this action. It gives no insight into his character or the unique circumstances that have led up to the current situation. investigations. In using this term, his agency is diminished. It is instead seen as combative force against the agency of the medical staff attempting to assess him.
Introducing an upcoming hearing: Is a kidney transplant in his best interests?
A 17y/o with kidney disease, learning disability, autism and ADHD is at the centre of a court decision about a kidney transplant. Bonnie Venter (@TheOrganOgress) will be reporting from court over the next 4 days.
Delay in finding a suitable placement for a young adult with Prader-Willi syndrome
By Aura Mackintosh Bamber, 22 February 2022 For any child’s family, a diagnosis of Prader-Willi Syndrome brings with it a number of responsibilities and worries that are involved in properly caring for and managing this complex disorder. These worries are only exacerbated when a decision is made to deprive that child of their liberty inContinue reading “Delay in finding a suitable placement for a young adult with Prader-Willi syndrome”
Prader-Willi Syndrome and Transparency
A young man with Prader-Willi Syndrome was at the centre of a hearing before Theis J. I can only tell you this because journalist Brian Farmer and I made submissions to the judge saying that we should be allowed to report it and she eventually agreed.
A response to ‘The politics of the pandemic…’: COVID-vaccination of a disabled man
Let me be clear: I also do not know where the evidence points, because the evidence is not reliably available to examine. I do not know this because the supremacy of evidence-based medicine has been lost, which is personally devastating, as I wonder what will happen to evidence, debate, scientific method and freedom to explore uncertainty.
Promoting Open Justice in the Court of Protection 