By Ty Glover, 25th February 2024
I’m a Consultant in Eating Disorders Psychiatry, an Independent Medicolegal Expert and a member of the Royal College of Psychiatrists for over 25 years.
My clinical career has been spent managing acutely unwell NHS patients in Independent Sector Hospitals, primarily patients suffering with severe Anorexia Nervosa but also those with acute forms of other mental health conditions. I have worked across the North of England and am currently providing Consultant input to Schoen Clinic’s acute Eating Disorders unit in York. I have 10 years prior experience of Acute Medicine, Anaesthesia and Intensive Care and am an ex-Fellow of the Royal College of Anaesthetists.
My medicolegal career has developed almost exclusively in relation to Court of Protection proceedings, mostly relating to Serious Medical Treatment, with only limited exposure to coronial work and civil litigation.
My medicolegal experience commenced, rather out of the blue, with a phone call one afternoon from a member of the Official Solicitor’s team, explaining the circumstances of an extremely unwell young woman in Wales, who needed an urgent independent opinion for a court hearing one week later.
That case turned out to be Re E (Re E (Medical treatment: Anorexia) EWHC 1639 (COP)) and led on to me receiving multiple instructions to act as an expert witness in relation, primarily, to capacity considerations in both severe eating disorders and other general mental health conditions.
I have since been instructed in Court of Protection proceedings on over 40 occasions and have given oral evidence in more than two dozen cases.
This blog post is organised as follow:
- Re E and Re L: Two key cases
- Rare personal tragedies
- The Mental Capacity Act is a good teacher
- The words matter
- Everything changes
1. Re E and Re L: Two key cases
In the first case, Re E, the end result of that Friday afternoon phone call, once I had had time to consider E’s history and records, it became clear that she had received little intensive inpatient treatment, despite suffering from severe Anorexia Nervosa for many years. When she had received treatment, she had made significant, if not sustained, progress.
At the time of my assessment, E was on an “end of life care pathway” and the family seemed to have accepted that she was drawing towards the end of her life.
In my opinion, there was no doubt that E lacked capacity to make decisions about care and treatment, specifically nutrition, due to the overwhelming and intrusive nature of her anorexic cognitions, which impaired her ability to weigh matters in the balance. Given the relative paucity (in my opinion) of treatment, it did not seem appropriate for a woman in her late twenties to be on an end-of-life care pathway when intensive treatment in a specialist eating disorder unit may well produce significant improvement – though I and another independent colleague acknowledged that the chance of sustained recovery was less than 30%.
E was in fact treated against her will in her best interests, following directions from Mr Justice Peter Jackson (as he was then). The case was widely reported in the media, e.g. “‘As hard as it gets’: the case of anorexic E and the right to die”; “Anorexic woman should be fed against her wishes, judge rules”.
The second case in which I was appointed as an expert witness to the Court of Protection was Re L (The NHS Trust v L [2012] EWHC 2741 (COP)) and in that case the parameters were markedly different. L had been treated on numerous occasions in recognised centres of excellence with specialist eating disorder experience. Her resistance to treatment had been extreme and as difficult to manage as any case I have witnessed before or since. She had suffered numerous physical complications, often secondary to interfering with her feeding, including aspiration pneumonia, for which she had required intensive care treatment on several occasions.
At the time of my assessment L’s BMI was 7.7 and she was only prepared to accept 625 kcal per day, which was insufficient to sustain her life. Despite spending a significant period of time trying to persuade her that a slight increase (1 kcal per hr) in calorific intake would be beneficial, L continued to refuse.
Knowing that L had received extensive inpatient treatment (13 years out of the last 17 years of her life), there was no doubt in my mind that she both lacked capacity to make decisions about care and treatment, and also that it was no longer in her best interest to forcibly feed her against her will.
The judgment from Mrs Justice Eleanor King (as she then was) confirmed that feeding or treatment which was not in keeping with L’s wishes, was no longer in her best interests. Forcible or coercive feeding was then no longer an option and I understand that three months or so after that judgment, L sadly died. (This case was also reported in the media, e.g. “Anorexic woman not to be force-fed, judge rules”.)
2. Rare personal tragedies
The young women in Re E and Re L share the similarity of addressing the relentless and torturous nature of severe Anorexia and fortuitously differ in that they represent, to some extent, extremes of the intensity and duration of treatments required in patients with such severe Anorexia.
E had clearly suffered from Anorexia for many years, but had been inadequately treated. L had similarly suffered with an extremely severe form of Anorexia, but had been extensively treated with absolutely no evidence that she was likely to make a sustained recovery.
Both of these individuals had suffered severe and lengthy psychological trauma from their anorexic condition. The impact on them and those close to them had been extensive.
Most patients with Anorexia are treated in the community. Those with the most severe forms of Anorexia require treatment in inpatient units, and usually comply with treatment, even though, for some, detention under the Mental Health Act is required.
To have been treated over many years with no apparent progress, and with continued resistance to any form of intervention is extremely rare.
It is vital that we remember, as with all chronic severe illnesses, that these illnesses primarily represent a tragedy for the individual involved and their families. Their appearance before the Court of Protection allows for a compassionate yet forensic analysis of the facts and opinions of those involved. What has been of particular note to me in my experience of the court, has been the sensitive, yet searching questioning that has focussed unerringly on the individual and what could be deemed to be in their best interests, once lack of capacity has been established.
The court process has allowed thoughtful and considered weight to be placed on the views of family members whose lives have been deeply affected by their loved one’s illness, but who are also able to provide an intimate and often lovingly dispassionate view of the severity of the physical and psychological symptoms.
The Court of Protection has been, in my experience, both a challenging but also reassuring forum. No stone is left unturned and no possible or future treatment is beyond consideration. Only the best interests of an often vulnerable and traumatised individual matter.
3. The Mental Capacity Act is a good teacher
It would be reasonable to say that my medicolegal work has been the most rewarding aspect of a long and broadly enjoyable medical career. The work is fascinating, challenging and sometimes exhausting but has undoubtedly been deeply rewarding in many ways both personally and professionally.
It was initially difficult to accept the need to learn a new skill and read one’s own work critically but I have been very lucky to have been guided by very supportive legal colleagues, with a particular mention to the Official Solicitor’s team.
One of the key changes, which I refer to later, is the precision of language expected by lawyers, and the expectation that all questions will be answered. As an expert you need to quickly understand the parties involved in the proceedings and try to understand each of their positions. Whether (as is usual) you are jointly instructed or instructed by just one of the parties, your duty is to the court, and you must be honest, objective and impartial. (See GMC guidance for doctors acting as a witness in legal proceedings).
In terms of capacity, the starting point, if the presumption of capacity is to be rebutted, is whether there is evidence that a person cannot understand, retain, weigh and communicate the information relevant to making the decision under examination (e.g. to consent to or to refuse clinically assisted nutrition and hydration) and if not, whether their inability to do so is caused by their Anorexia (or other mental health) diagnosis.
Opinions regarding exact diagnosis, symptomatology and the impact of that symptomatology on the capacity process is the “core” of the case for an independent witness in the Court of Protection. It is my practice to use recognised classification texts (ICD, DSM) with reference to specific symptomatology, preferably verbatim or from direct medical observation to confirm diagnosis.
The information relevant to the decision that needs to be made (i.e., the information that an individual needs to be able to understand, retain and weight) is difficult to list in its entirety but the key components relevant to the decision in question should be identified.
It is reasonable, and probably advisable, to document one’s thought process taking one or other point of view or diagnosis and thinking through the impact on an individual’s decision-making in comparison with what their decision-making would have been without the impact of their mental disorder. It is sometimes, but not often, easy to make such determinations. The comments of P, others in their close circle including family, clinical staff etc can help illuminate dilemmas when they occur.
Before giving oral evidence, it is wise to fully reacquaint yourself with the key facts of the case and the key evidence on which you have based your opinion in relation to symptoms, diagnosis and capacity.
Although almost always asked for my opinion as to best interests, I believe that the role of the independent expert is less prominent in determining an individual’s best interests as their relationship with P is likely to be only recent and inevitably somewhat limited. My working rule is that best interests decisions are best left to those people closest to P personally and those clinicians closest to P professionally.
As well as being rewarding, my experience in the Court of Protection has changed my overall thinking in relation to mental disorders.
There is, perhaps, a tendency for those involved in treating mental illness, particularly those individuals who lack capacity to make decisions in some domains, to take a paternalistic approach to many aspects of a patient’s care and lifestyle. This can involve insisting on certain treatment pathways being followed whether or not, in all those decisions, the patient has capacity to decide for themselves or, if they do not, whether the proposed treatment is definitely in their best interests. Continued consideration of many aspects of treatment (clinical observations, medication, whether to go on a walk) in terms of capacity leads, I think, to a more respectful and less judgmental approach.
The challenging analysis of my reasoning in court has led to consideration of and changes to my own practice. Two examples:
While working on a general adult ward, the ward manager and I noted that only decaffeinated coffee was available to the patients. I pointed out that there was no reason that patients with any form of mental illness, perhaps except Anorexia, would lack capacity to make the determination as to whether to drink caffeine or not. We agreed that we should presume all patients retained capacity to make that decision given appropriate advice in relation to stimulant effects, insomnia etc. That practice was stopped and both caffeinated and decaffeinated coffee were made available to all patients with appropriate advice as to the potential health benefits and risks of both.
The specific area which has been most affected is in my practice in relation to medication. Although there are many conditions which fundamentally alter a patient’s ability to make decisions about medication when they are in the throes of a severe mental illness, there are also many conditions in which capacity in that domain is unaffected. Anorexia, in my opinion, is one of those conditions in which capacity in relation to medication is very often, though not always, retained. There is, as yet, hardly sufficient evidence, in my opinion, that any medication has sufficient impact on Anorexia to insist that the patient should take it and enforce treatment against the patient’s wishes, though that opinion would likely be extensively debated by a body of my peers.
I now employ an almost universally collaborative and consensual approach to medication wherever possible, explaining the benefits and side-effects of each medication and allowing the patient to make that decision when I am confident that they retain capacity to do so. This has led to a marked improvement in concordance with medication and much more informed and respectful discussions take place with no real and, as far as possible, no perceived pressure.
4. The words matter
As I pointed out during my talk at 39 Essex Chambers (on which this blog post is based), it is rather fatuous to attend a workshop primarily populated by lawyers, and make the point that words matter. This is a point primarily directed towards my medical colleagues, in relation to language, instructions, and the judgments passed down in cases of note.
Lawyers employ language much more carefully and precisely than we do as medics. We can all, in medicine, be somewhat haphazard and approximate in our language, as we are often working with people for whom shared jargon and shorthand language is a convenient and effective means of communication.
That mode of communication does not translate into the legal sphere. Careful and precise definition of terms, diagnostic criteria, symptomatology, and the impact of that symptomatology on an individual’s thinking are required to highlight the evidence for or against the continued presumption of capacity.
The most important domain in which I would emphasise my view that the words matter is in relation to the judgments.
As far as I am aware, almost all of the judgments, (with the notable exception of my first case, Re E) have been to the effect that P lacks capacity in the critical domains and that it is now deemed not to be in P’s best interests for treatment to be given with which P disagrees.
That allows access to all forms of treatment with which P is willing to engage and may even allow for an increase in some forms of, say, community treatment. The judgments have not been that any patient should enter terminal care. No judgment in a case of Anorexia, as far as I am aware, has suggested that the patient be placed on an end-of-life pathway. The judgments have been directed solely towards a person’s best interests with the recognition that, on some occasions, and in some very severe cases, further coercive treatment is no longer appropriate, and according to the careful consideration of the court, treatment contrary to the person’s wishes is no longer in that person’s best interests.
This was accurately reported in the Guardian article about Re L:
After hearing the evidence, Mrs Justice King ruled it would be in L’s best interests for medical staff to provide her with nutrition, hydration and medical treatment “in circumstances where she complies with that administration”.
She also declared medical staff should be permitted “not to provide L with nutrition and hydration” if she did not agree to it, and it was not possible to do “without the use of physical force”.
An order by the judge said “all reasonable steps” should be taken to help L, including the use of persuasion involving her parents and others “in whom she might have some trust”.
5. Everything changes
By ‘everything’, I refer to patients, clinicians, illnesses, and progress in relation to effective medications, therapies, and modalities of treatment.
As with all ‘best interests’ considerations, determinations are time specific and issue specific. Although it is reasonable to assume that patients with chronic Anorexia who lack capacity at one time are likely to lack capacity almost indefinitely, that is not always true. Also, a patient’s best interests are very likely to change over time.
Even chronic Anorexia waxes and wanes.
There may be periods when P is more amenable to intervention and those interventions might then be provided.
On other occasions, patients are often very resistive and forcible treatment may then continue to be deemed not in their best interests – with a watching brief and a minimisation of harm the only clear guidelines.
Further clinical models are likely to become available. Recent research suggests that with intensive psychological therapy and a bespoke program incorporating pre-admission and post discharge elements. recovery from Anorexia may reach 70%. The establishment and validation of these models warrants careful and ongoing consideration with the methods used analysed for their relevance in patients whose extremely severe anorexic conditions warrant consideration by the Court of Protection.
The other area which seems to be developing, most promisingly in my opinion, relates to what are commonly called psychedelic medications. Although still considered by some to be on the fringes of psychiatry, a recent presentation by Professor David Nutt at the Royal College of Psychiatrists’ Faculty of Eating Disorders Annual Conference suggests that the potential efficacy of these compounds is penetrating the mainstream. There may be transformative effects from psychedelic medication and this, as with many other aspects of treatment, bears ongoing assessment with continued potential for change.
As everything changes, so capacity assessments and best interests determinations must be dynamic and remain up-to-date, with careful attention being paid both to the changing individual and to the changing world in which they live.
Ty Glover is a Consultant in Eating Disorders Psychiatry and an Independent Medicolegal Expert, whose knowledge of this field draws from his experience over the last 12 years as an expert witness in numerous complex cases of serious medical treatment involving eating disorders in the broadest and narrowest sense of that term – as well as further experience as an expert witness in the Court of Protection in relation to mental health problems unrelated to disordered eating.
Note: This is both a summary and a development of a brief contribution I gave at a recent seminar entitled “Anorexia and the Court of Protection” held at 39 Essex Chambers, chaired by Ms Justice Henke. I am grateful for Celia Kitzinger’s invitation to reprise and develop the broad topics I covered in that forum. There is a link to the recording and materials from the workshop here: https://www.39essex.com/events/anorexia-and-court-protection








