Person-Centred Decision Making in the Court of Protection

By Sara Shorten – 22nd June, 2020

Last week I had the opportunity to attend a Court of Protection remote hearing before the honourable Mr Justice Hayden (listed as case number 13596518 Re ‘D’ in the Royal Courts of Justice list on 19 June 2020).  

It was the first COP hearing I had been to and due to COVID-19, it was being held online via Microsoft Teams. This enabled me to request access to the hearing and join it with ease.

The hearing related to a young woman with a cognitive impairment, a complex mental health background and a number of vulnerabilities.  The court was considering issues relating to where she should live, medical decisions (including contraception), and concerns relating to her capacity to engage with public health messages and social distancing during the pandemic.

The first thing that struck me was the rigid formality when addressing the judge.  Was I going to understand what was happening?  

Then what came next was the most surprising – but obvious and appropriate – request by the Judge: “Is D joining us? It would be lovely to meet her and talk directly to her.”

As a nurse my main focus is that the person remains at the centre of everything.   It was so reassuring to see that this also was the primary focus within a formal court hearing for Mr Justice Hayden.  The person-centred approach to this hearing epitomises and reflects exactly what I believe the Mental Capacity Act is all about.  Mr Justice Hayden reinforced this focus on the person at the centre of the case throughout the hearing – especially when the lawyers were drifting away from being decision- or time-specific.

I felt very reassured that person-centred decision making triumphed in this case.

As stated by Mr Justice Hayden “This is not a paternalistic Act. It is an autonomous Act”.  My role within my organisation enables me to echo those words.

For me, patient autonomy is a fundamental principle within healthcare and the MCA requires us to appreciate the importance of the principle of autonomy and individualised decision-making in everything we do, with every person we care for.

I will be aiming to attend many more of the court hearings and hope to give feedback information about how the court works and the way it makes decisions, both through this blog and to my organisation.

Sara Shorten is the Mental Capacity Act Lead and Matron at Norfolk and Norwich University NHS Trust.  She is an RGN and has been nursing for 29 years.  She tweets @ipswichgrove.

Transparency in the Court of Protection

By Patrick – 20th June, 2020

The judgment for this hearing has since been published here: Cumbria County Council v A [2020] EWCOP 38 (16 July 2020)

Late last Sunday night I happened upon a tweet from Celia Kitzinger:

The tweet garnered an enthusiastic response and an unexpectedly large uptake. Accordingly, and thanks to their resourcefulness and commitment to open justice, Celia Kitzinger and Gill Loomes-Quinn have since launched the Open Justice Court of Protection Project. This blog post is an account of my experience of taking up the gauntlet and observing a hearing in the Court of Protection for the first time. I offer it in the furtherance of the goal of transparency, and to encourage others to give observing a go themselves.

Why I was interested

The original tweet sparked my interest for a few reasons: 

I have no legal education or professional background, but I have for the last year and a half been investigating a career change to the Bar. I’d been hoping to use these past few months to pursue mini-pupillages. Circumstances having intervened somewhat, I’m doing my best to seek out all the practical legal opportunities I can from the comfort of my kitchen table. After spending many hours on the Supreme Court video archive, or struggling with the audio on the Court of Appeal live streams, the idea of branching out into the Court of Protection was appealing.

It was especially so because one of the catalysts for my interest in the law has been acting as executor in an estate subject to a probate dispute centred on the issue of the testator’s capacity. Reading around that case, from Banks v Goodfellow, through some Law Commission reports, to the Mental Capacity Act, I’ve developed a fledgling academic interest in the area to match my personal one. 

Finally, like many, I’ve been troubled by the potential effects of the current crisis on vulnerable people, including those who lack capacity. All the more reason, then, to support the goals of open justice and bear witness to the profound decisions now being made remotely in the Court of Protection.

Securing access

Helpfully guided by Celia and her blogging (especially here), I braved the listings and chose to seek access to this case:

Before MR JUSTICE HAYDEN

Also sitting as a Judge in the Court of Protection

Monday, 15 June, 2020

At 10:30 AM

FOR HEARING IN OPEN COURT

COP 12922022 Re A 

Remote Hearing

This case seemed ideal for my purposes. It had been listed for open hearing, so there hopefully wouldn’t be too much trouble in gaining access; it was to be held over video link, which would hopefully make it more engaging, and easier to follow for a novice like me; and it was being heard by a senior judge (the Vice President of the Court of Protection, no less) so it would hopefully be dealing with an important or juicy point of law. Celia told me that such a case might only come along once every couple of weeks, so I felt lucky that this one had fallen into my lap. By this point, Sunday night had become Monday morning, so I wrote an email to the Royal Courts of Justice asking to be given information about how to access the hearing, scheduled it to be sent by Gmail at a more civilised hour, and went to bed.

The next morning, around two hours before the hearing was scheduled to begin, I received an email from the judge’s clerk providing an access link via Microsoft Teams. For the first time that I had seen, there was also an indication of how long the hearing was expected to take: two days. I had a commitment that afternoon, and several the next day, but I decided to join for as much as I could. In the end, the hearing finished late on Monday afternoon, so I ‘only’ missed about two hours around the lunch break.

Following the advice in Celia’s blog, I replied to the email, asking for a transparency order and position statements or draft orders to help me follow the hearing. (The advice was also to ask if the judge’s attention might be brought to this letter, with its suggestion of “a short opening helping to place the identified issues in some context” as a way of improving access when observers were present. Given that the author of the letter was one Mr Justice Hayden, that step seemed a little superfluous in this case!) As the clerk had instructed in her email, I sent my request to the RCJ mailbox. Doubtless due to the short notice and the high workload of the court and its staff, I didn’t receive a reply. Inevitably, the absence of background information, including documents mentioned in court, made the hearing harder to follow.

The hearing begins

When the time came for me to access the Microsoft Teams meeting, a few minutes before the hearing was due to start, I was asked politely by the clerk to show my face on video and confirm that I understood I was not allowed to record any of the proceedings. (For what it’s worth, there was no problem when another observer joined but was unable to activate a camera on her computer.) Including participants and observers, the total number of people in ‘attendance’ at the hearing was around ten throughout, though numbers did dwindle slightly as the day progressed.

The judge joined the meeting at 10:30 promptly, having been notified by the clerk that all the barristers and solicitors had logged on. The clerk announced his arrival, stated the name of the case and informed everyone that she was starting the recording.

In another indication of the court’s high caseload, the Judge expressed his regret at not having had reading time. He had managed over the weekend to read the “lengthy but helpful” statement from the Office of the Public Guardian (OPG) and the skeleton arguments, but not all the facts of the cases. It was generally agreed – as he had suspected – that this was not really necessary.

Following the recommendations in his own aforementioned letter, the judge asked the barrister who was due to speak first to set the case in its context. A very brief background was sketched: the applicant was a professional deputy who had applied to take over responsibility for the financial affairs of eighteen people. So far, eleven of the applications had been granted, and this case was to deal with the other seven.

This was the first indication any of the observers had received as to the subject matter of the hearing. I know that some were disappointed to hear the case concerned an area they knew nothing about and in which they had no particular interest. At least two observers discreetly left the meeting for those reasons (having emailed the clerk to explain they were doing so). It certainly seems that it would be helpful to include in the case listing a few keywords to indicate the themes or issues involved (as is done on the lists from First Avenue House). Neither would it seem overly burdensome to do so — though of course that’s easy for me to say.

As the hearing progressed, it became clear that the application had first been made about two years ago, but had been delayed for a variety of reasons. The judge at first instance, Judge Hilder, had referred the case upward because she had numerous reservations about granting the application, and thought there were important points involved that would be best heard by a tier 3 judge.

The applicant himself was not represented by a barrister at this hearing, though his solicitor was present. His desires were aligned with those of the County Council, which was currently the Ps’ deputy, but no longer wished to be. The council had its own solicitor, and was represented by one of the two barristers present. The other appeared for the OPG, which was opposing the application. The OPG also had a solicitor in attendance. 

The cameras of the solicitors, the barristers and the judge remained on throughout, joined sometimes by the judge’s clerk or, on one occasion, an errant observer.

As the judge stressed repeatedly, proceedings in the Court of Protection were concerned with what is in P’s best interests. He described it as “the most highly fact sensitive area of the law”, with no scope for generalisation.

The main event

(It’s worth repeating that this is an account of the hearing as it seemed to me, bearing in mind I have no formal legal education and no previous experience with the court.)

Throughout the hearing there was debate and some confusion as to what exactly the judge was being asked to decide. The judge had found the barristers’ pre-agreed account of the issues at hand too vague, and soon after the hearing began he gave them a break of around ten minutes to decide on something more specific. During the break, the judge left the meeting, the recording was stopped, and the barristers were able to mute their microphones and telephone each other to discuss the issues. They duly came back with an agreement (which was described by reference to paperwork I couldn’t see). However, this debate recurred not infrequently over the course of the hearing.

Money emerged as a major driver on both sides of the case: the council was at least partly motivated by a desire to save money from a tight budget and to manage the competing demands on its limited resources. This was acknowledged as a legitimate consideration. Those opposing the application were concerned that the charging rates of the private deputy were considerably higher than the amount the ‘P’s were currently paying the council. They argued that it could not be in the ‘P’s best interests to pay more for a service that was effectively the same.

The central question seemed to be whether the court could compel a deputy (in this case, the council) to remain in that role against their wishes.

The barrister for the council argued that a deputy’s decision to withdraw could not be impugned as long as it was lawful. Further, the question of lawfulness was not one for the Court of Protection to decide. (It might instead be determined by judicial review.)  The Court of Protection should concern itself with what is in P’s best interests. While making that calculation, he argued, the court should not regard as an option the continuation of the status quo, with the council as deputy. The council’s unwillingness to continue as deputy had taken that option off the table.

The judge was clearly sceptical of this argument, pointing out that the key decision here lay not in the hands of the council as existing deputy, but in the hands of the court. Any decision by the council that it no longer wished to act as deputy was without effect unless the court decided to grant the application. Moreover, given that the application at hand in this case was to discharge the council as deputy, there was some question as to whether the applicant in this case should be the council, rather than the private deputy who was hoping to step in. 

The judge drew a comparison with family law: where a local authority may wish to have a care order discharged because of the burden of the obligations that order imposes on it. (He recalled appearing once before Mrs Justice Hale, as she was then, for such a local authority, and failing to convince her that the court should allow his client’s application for discharge.) It is settled law, he said, that a local authority will not be permitted to discharge a care order if it is found to be in the child’s best interests that the order should continue. The parallel with the case at hand was clear.

The council’s barrister argued robustly against this, maintaining the council had withdrawn consent to act as deputy and, as such, the best interests calculation in this case could not include its continuation as deputy as an option.

He warned that if the court decided it could compel the council to remain as deputy, it would mean that private bodies or individuals could also be compelled to remain as deputies against their wishes. This could have serious consequences in terms of people being less willing to become deputies. 

While he conceded that policy considerations should only feature peripherally in the court’s deliberations, he maintained that there could be grave implications here as to the personal liberty of private individuals acting as deputies. He submitted that Parliament had not explicitly given the Court of Protection the power to infringe on that liberty: the Mental Capacity Act 2005, which created the Court of Protection, contained no such explicit provision. It was, rather, a matter of construction regarding section 19.3 of the Act. According to legislation.gov.uk, that section states that “[a] person may not be appointed as a deputy without his consent”.

In reply, the judge indicated he did not consider that compelling the council to remain as deputy would be equivalent to appointing them as such. In reference to potential policy implications, he said the question under discussion was what the court could do, rather than what it should.

The second major question the court considered was the relationship between the Court of Protection and judicial review. It was even remarked at the outset that the judgment in this case could be “a magnum opus” on the subject — that was, “if your Lordship had it in him”.

The barrister for the OPG argued that section 149 of the Equality Act applied to this case, due to the presence of a protected characteristic: the Ps’ disabilities. As such, the council, being a public authority, must have “due regard” to the need “to remove or minimise disadvantages suffered by persons who share a relevant protected characteristic, that are connected to that characteristic”. 

Here, the disadvantages to the Ps by the proposed new arrangement would be financial, and the judge seemed to doubt whether money counted as being “connected to” the relevant protected characteristic. [I wondered, perhaps naïvely, whether the statistics on the correlation between disability and poverty might bolster an argument in the other direction.]

Opposing counsel argued that while section 149 might well apply, the proper way of testing that and challenging the proposed new arrangement would be through judicial review.

The judge pointed out that the relevant decision for judicial review in this case would be a decision of the Court of Protection to allow the discharge. At least as yet, no such decision had been made.

Counsel for the OPG insisted that there was “something special” about section 149 of the Equality Act that meant the Court of Protection could properly consider it. It was “purely procedural”, in that it asked for “due regard”. Determining whether due regard had been given did not require conducting a merits-based review or diving deep into the substance of the criteria by which a decision was made. It was not, he argued, a matter of pure public law. There was no challenge to the merits of any criteria on rationality, for example, which he conceded would be the domain of judicial review. 

It was, he went on to argue, effectively a matter of case management for the court to decide what factors to take into account in the exercise of its discretion. For one, the court could ask what was motivating the council’s lack of willingness to continue as deputy. The judge agreed on the last point, but said the council was hardly hiding that money was a major factor. What was more, they were allowed to take money into account.

Finally, the judge alighted on the question of what factors should go into the decision as to whether a deputy should be discharged.

The barrister for the OPG identified the following:

  • Complexity (in general, the more complex P’s needs or financial situation, the more likely a private deputy is to be involved. In this case, the council had advanced complexity as an additional reason for wanting to transfer the deputyships to the private deputy.)
  • Cost
  • Personal dynamic
  • P’s wishes and feelings (if not already included under personal dynamic)

The judge thanked him for his submission, signalled that this was an area on which he would be reflecting further, and invited both counsel to contact him after the conclusion of the hearing with any additional thoughts on the matter. The barrister for the council had been reluctant to engage with the question for fear of prejudicing his submission that it concerned a decision the court should not be making, but he indicated that he might contact the judge with a reply “in the alternative”.

He closed by saying that it would be helpful for the judge to give an indication in his judgment of how to proceed with an application of this kind in future. The process in this case had been unnecessarily difficult and inefficient in terms of time and cost; some of the Ps concerned had died in the two years since the application had first been made. He indicated that a swift judgment would be helpful and appreciated. 

The judge confirmed that he would make his judgment available as soon as possible after the end of this week. (A link to the judgment will be posted at the end of this blog when it becomes available.)

My impressions

In terms of the technology, everything was pretty seamless. I had no previous experience with Microsoft Teams but the software was easy to download (though downloading it might not actually have been necessary), worked well and was intuitive to use. The picture quality was excellent throughout, with six or seven cameras on at all times. Microphones were muted as much as possible in order to preserve audio and video quality, especially during the afternoon, when collective experience seemed to be that the internet, perhaps because of increased traffic, was more likely to play up. I noticed almost no glitches or interference, though I was absent for a portion of the afternoon session. Infrequently, participants overlapped in their speech, perhaps due to a slight delay in the feed, but any impact was negligible. Counsel and solicitors were able when necessary to turn off their microphones and make other telephone calls. It undoubtedly made matters easier that no witnesses had to be questioned in this hearing. 

One thing worth noting was that, notwithstanding the involvement of the OPG, there was no direct representation for the Ps and no real sense of them in proceedings. As far as I know, none of the observers knew any of them personally. I don’t recall any mention of any humanising details about them as individuals in the time I was observing, though of course this may have happened while I was absent. I imagine the fact that the case involved seven Ps might be of some importance in this regard, and the lack of reading time might also have been a factor. Perhaps most significantly, it just may not have been necessary in dealing with the issues before the court. Certainly proceedings were conducted with an appropriate sense of gravity throughout. All in all, concerns that have been voiced elsewhere about the nature of a remote hearing being desensitising or reducing compassion didn’t appear particularly relevant in this case. This seemed exactly the kind of hearing that could be conducted well remotely. 

As someone uninitiated in the ways of the Court of Protection, I was struck by the fluidity of proceedings: how easily the judge intervened and thrashed out points with the barristers, or invited opposing counsel to comment. Terms of address were formal, with an abundance of ‘lordships’ and ‘learned friends’, but no robes or wigs were worn. At times the form of the hearing felt almost like a business meeting or a university tutorial.

I would definitely encourage others to observe a hearing in the Court of Protection. Even in a case like this one, where the subject matter at first seemed completely arcane, issues were raised that were wide-ranging and significant enough to interest a (relatively!) broad array of people. The close-up camera shots of the participants provided a remarkably intimate window into aspects of the hearing, like style of advocacy, that would be of especial interest to anyone studying (or thinking of studying) the law.

The experience was enhanced because the judge was clearly committed to open justice, the clerk was polite and helpful, the technology worked well and the hearing was conducted by video link rather than over the phone.

Finally, I understand that arrangements for the management of remote hearings are under review. There are some minor changes that would do a lot to facilitate the access of observers. One is an earlier indication of time estimates and the topics involved; another, the supply of position statements and draft orders to make proceedings easier to follow. A comprehensive, consolidated listing system would make a major difference.


Patrick studied languages at university, before training as an actor and going on to work internationally in film, television and theatre. Alongside acting, he has pursued his interest in legal issues by other work and volunteering, including with the Southwark Pensioners Centre, the Belarus Free Theatre and the United Nations Relief and Works Agency in Syria. He is planning to start the GDL next year, with a view to eventually practising at the Bar. He would be delighted to hear of any and all opportunities for gaining further legal insight or experience, especially in these challenging times.

He can be reached at patricklawmail@gmail.com or @patricklawtweet on Twitter.

Observing my First Court of Protection Hearing

By Meriel Scott – 19th June, 2020

Monday 15 June

10.30am 13159699 SF

DJ Eldergill

“To consider:  Varying or terminating an urgent or standard authorisation under the deprivation of liberty safeguards”

This was the way the hearing I observed was listed on the government webpage for First Avenue House, the London home of the Court of Protection.

I was keen to observe a Court of Protection hearing because I’ve just finished the GDL (Graduate Diploma in Law) and am starting on the BTC (Barrister Training Course) after the Summer, so I thought this would be really good experience for me.   I’m interested in medical ethics and clinical negligence for my future career and I can see the overlap with the work the Court of Protection does. 

I sent two emails requesting access to the hearing using the email address displayed on the First Avenue House website – but they both bounced back.  Celia Kitzinger, from the Open Justice Court of Protection Project, checked for me and discovered they’d posted an email address with a typo in it, and gave me the correct email address, so I tried again. Third time lucky!  I thought I wasn’t going to get a reply because nothing came through until 10.30, which was the time the hearing was due to start – but then I was sent a number at exactly 10.30 to dial in on. I also received a Transparency Order attached to the email which set out conditions and restrictions regarding identification of the parties to the hearing and explaining contempt of court issues.  

The hearing was conducted by phone.  When I called in, I found I was speaking directly to District Judge Eldergill and he explained what the hearing was about.  It concerned a young man who had “severe autism” and the hearing was about his relocating from one area of the country to another. There had been various complications around costs and dates. The family was not happy with the lack of attention being given to the care plan by the residential home he was in, so they were very keen that he should move. I think this plan to move him had been decided at a previous hearing in March, and then everything had stalled because of COVID-19.   It was very helpful to get a brief summary like this from the Judge at the beginning of the hearing.

It was the first Court of Protection hearing I had listened to and it was hard for me to know exactly what all the terminology meant and what was being referred to and also to understand exactly what stage things were at in this whole series of hearings that had been held about this young gentleman.  But I definitely felt I got the general gist.

There were lots of people at the hearing. There was someone representing the young gentleman in question. Then his parents were there, and his sister and her partner. There were representatives from the County Council where he was currently living, and from the Council he was moving to. There was also someone from the care home he was in and someone representing the accommodation he was moving to. And the young gentleman’s psychologist.  So that was quite a few people for a phone call but luckily they had quite a few different accents which made it easier to follow who was speaking – and they did tend to re-announce who they were when they started speaking again – “It’s Mr [Name] again”, that sort of thing –  which I was very glad of.  But there were lots of occasions where people talked over each other to the extent that the Judge had to keep intervening to keep order.  Especially when things were contentious!  It was very different to video where you’ve got that body language – that sort of “run up” to someone wanting to say their bit.

The young gentleman’s sister in particular was very frustrated at what had been happening and she went off on a tangent a bit, saying things directed against the care home, and the Judge tried to restrain her.  But she kept saying, “I want to be heard.  Nobody’s listening to me”. And I thought that the telephone conference, compared with a physical courtroom, gave her more control and freedom to speak.  She came across very powerfully. There must have been about four occasions when matters were somewhat heated and there were more than two people speaking over each other.  And Judge Eldergill really had to state firmly, “One person at a time!”   But then in other ways people were very respectful and asked for permission and said, “Can I speak next?”. 

The barrister for the young gentleman was very clear and very specific about what he expected out of the hearing. He was very business-like and made it clear what answers he was looking for from the hearing – including confirmed dates for the move.  Because the people from the County Council were being incredibly vague saying things like “ooh, I haven’t had an email back about that yet” and he was trying to tie them down and get them to commit.  He was saying “That’s not acceptable – we’re not having another hearing unnecessarily”.   And they did agree a week in July when the move would take place. 

One of the issues discussed at the hearing was the problem caused by the fact that the young gentleman’s visits had been restricted. They’d put in place 30-minute visits for the family to come to the care home, but the fact that he couldn’t go out with carers and have interaction in the community had had quite an impact on his mental health. His sister had asked if she could take the place of the carers and there was a lot of discussion about how that would work without putting other residents at risk regarding COVID-19.  The Judge agreed that she would take a test, and only on a negative result would she be allowed to take the young gentleman out for two to three hours, and she’d have to wear PPE.  And the care home agreed to that and it was going to be put in the Order from the hearing.

Overall, I was surprised by how little the Judge spoke. The hearing was mostly everybody else conversing with each other, asking each other questions, and the Judge let them get on with it. It felt more like mediation in some ways.  It felt to me as if he was trying to get everyone to where they needed to be, in some kind of consensus, without dictating to them. And I thought that was good.

This hearing demonstrated to me the way in which the Court of Protection can work very effectively to enable people’s voices to be heard.  In a complex multi-agency situation, with a range of people all with their own particular involvements in the issues what’s important, and what I saw happen in this case, was a serious focus on getting things right for the individual person at the heart of it all.  

Meriel Scott is a future barrister looking to practice in the area of clinical negligence. Meriel is an older student en route to the Bar and brings experience from working in the charity, local government and higher education sectors. She tweets @Mezbop

Making Transparency a Reality in the Court of Protection: A Rallying Call for Autistic Pride Day 2020

By Gill Loomes-Quinn – 18th June, 2020

Today is Autistic Pride Day. It is the fifteenth time June 18th has marked the celebration since it was inaugurated by the campaign and solidarity group Aspies for Freedom in 2005, and subsequently taken up and developed both on- and offline by the autistic rights movement globally. As an autistic person, and a socio-legal researcher whose work focuses on the practical implications of the Mental Capacity Act 2005 – particularly the work of the Court of Protection, I reflect in this blog on why I see transparency in the Court of Protection as an issue of concern for the autistic rights movement, and why I think those who care about the values of Neurodiversity and justice for autistic people should engage with the work of a court that is a significant location of social and legal power in the lives of many autistic people.

Mental Capacity and Autism

While by no means all autistic people are deemed to lack the capacity to make key decisions for themselves  throughout the course of their lives, and while it is of course not exclusively autistic people who find themselves subject to the legal framework of the Mental Capacity Act 2005; there is certainly a considerable overlap between the autistic community and people deemed to lack mental capacity in relation to at least some decisions. It has been my experience since I began my career as a specialist autism advocate in 2007 (coincidentally, just one month after the Mental Capacity Act 2005 came into force fully, on 1st April 2007) that the “worlds” of autism and mental capacity law and practice operate in rather distinct “bubbles”, with each appearing at times to be rather hazy about the dispositions, needs, and requirements of the other. A welcome exception to this general picture is found in the work of Dr Yo Dunn who can be heard here, talking about the impact of mental capacity law on autistic people (though note that parts of Yo’s interview are now outdated, and should be read in conjunction with the Government Response to the Law Commission’s Review of Deprivation of Liberty Safeguards and Mental Capacity).

My own experience resonates clearly with Yo’s description of engaging with social care, and mental capacity law, and realising the frequency with which the mental capacity law I encounter (the published judgment I read, or the commentary I see) centres on the life of an autistic adult. We know that autistic people have been at the heart of many of the cases that have driven forward the development of mental capacity law – not least in the landmark Bournewood Case (HL v UK 45508/99 [2004] ECHR 71) that triggered the development of the Deprivation of Liberty Safeguards.  It is my view that given the number of autistic people whose lives are impacted (often profoundly) by practices shaped by the Mental Capacity Act 2005, including the work of the Court of Protection, autistic culture should form a significant part of socio-legal discourse surrounding the MCA 2005 in practice, and the Act should be a focus of concern and scrutiny for members of the autistic community and our allies.

Witnessing Law in Action for Autistic People – An Opportunity for Activism

As an autistic community, we are used to seeing devastating wrongs perpetrated against members of our community – the most outrageous scandals where we are left shouting for something to be done, for laws to be changed, for more scrutiny (e.g. the Winterbourne View scandal; Justice for LB; the abuse at Mendip House). So often it seems we are powerless against the risks posed to those of us who are most vulnerable in a society not designed by us, or for us, and in which we are so used to being devalued that our very humanity often appears to be in question. “Behind Closed Doors” is a frightening place if your human rights are a subject for debate.

But the Court of Protection is not “Behind Closed Doors”. Since the introduction of the “Transparency Pilot” in 2016 the majority of hearings that take place in the court (up to 30 in a day, across the country) are open to the public. This means that they are available for us to observe – to see how decisions are made that affect the lives of members of our community; to understand how the law works in practice; and to inform our political discourse with knowledge of what actually happens to those of us whose lives are impacted by the Court of Protection. This is not something we need to fight for. It is something we can do – right now.

At the Open Justice Court of Protection Project, we are supporting people every day to access hearings, and we are publishing their observations on our blog. I would very much like it if some of those were autistic people and our allies.

Gill Loomes-Quinn is an a socio-legal scholar and disability rights activist, with a background in specialist autism advocacy, and academic Autism Studies. She is passionate about promoting the role of social research in the pursuit of social change for autistic people. She held a teaching fellowship at ACER – the Autism Centre for Education and Research – University of Birmingham for several years, and has experience as a research consultant: Including the the Autism Education Trust, the International Disability Rights Monitor, and Inclusion London. Alongside her current PhD research, Gill works for Leeds Autism AIM – as a peer support and development worker, and is a convener of PARC (the Participatory Autism Research Collective).

Gill is co-founder of the Open Justice Court of Protection Project – she tweets as @GillLoomesQuinn

Seeing, Hearing and Understanding Justice Being Done

By Olwen Cockell – 18th June, 2020

As a speech and language therapist I am well aware of the disproportionate number of people with ‘hidden disabilities’ who come before the courts charged with an offence.  Despite the right to a fair trial enshrined in law too often those navigating the justice system find the language and processes complex and inaccessible precluding ‘effective participation’.  Courts have the capacity to make the necessary adjustments and enact special measures to facilitate effective communication for all parties but this is not yet commonplace.

One of a number of special measures that courts can deploy is the provision of an intermediary.  Intermediaries use their skills as communication specialists to assist vulnerable people to make informed choices, give their best evidence and understand the language and processes of the justice system – watch this video to learn more about the intermediary role.

Having worked as a paediatric speech therapist for many years I side-stepped into registered intermediary work in 2015.  I assist preschool and primary aged children who have witnessed crimes to give their most ‘complete, coherent and accurate’ evidence to the police and then later at court should the case come to trial.

Whether it’s because of working with children for such a long time…….or more likely because I’m not quite as smart as I’d like to think I am……my initial response was that of cold-blooded fear when Celia suggested that I might like to make gainful use of my lockdown free time to observe a hearing within the Court of Protection. 

Members of the public can observe public hearings in the Court of Protection but the system doesn’t make this terribly easy.  The daily court lists get published late in the afternoon the day before the hearings and even with that short notice those lists can still change.  For instance, Celia identified a potential hearing that might interest me and texted me about it but by the time I received the text and sat down to email the court to request permission that hearing had disappeared!  Finding Court of Protection hearings can also be tricky – they pop up in the dedicated Court of Protection list which covers hearings at First Avenue House in London,  but some are listed under the Family Division list and most appear in a very user-unfriendly form (for users who are members of the public) at CourtServe.  You need to be pretty obdurate.

But I persevered.  I had set aside a Tuesday morning to observe a hearing so that was what I was determined to do.  On Tuesday morning there were two potential hearings listed but with precious little information available about the nature of the hearings and the potential issues to be resolved I wasn’t really sure which hearing to select.  In the end the decision was made for me.  Having consulted Celia’s detailed advice about how to request access to the Court of Protection hearing I emailed the court clerk about my first-choice hearing but was promptly informed that this hearing had been rescheduled to mid-afternoon (when I was not available) and in any event was more than likely going to be vacated. So, with only 15 minutes to spare, I emailed again about my second choice hearing. 

Success!  Permission was granted for me to attend this other hearing and after a quick scramble to download Microsoft Teams, I holed up in my dining room to try and view the remote hearing undisturbed……and I achieved this for 35 minutes but my viewing of the hearing was then interrupted by my 13 year old son.  Being disturbed by a request from a hungry son for morning toast may sound trivial but it’s a breach of confidentiality.  Even though you’re in a virtual courtroom you are still in your own home – and I know that the issues of family life spilling over into professional lives are being experienced by many remote court participants – judges, barristers and witnesses alike – up and down the country. 

The Court of Protection has measures in place for guarding the privacy of the applicants.  Celia advised me that I should expect to be requested to complete a transparency order prior to my admission to the remote hearing – in my case this didn’t happen but the judge did give a verbal direction pertaining to privacy before the hearing commenced.  On the screen I could see the various parties, their names and the clerk did give a run-through of the ‘who’s who’ but this was brisk.

I’d heard terrible stories of remote hearings – tech drop outs and parties having to rely on phones being held up to screens so I was pleasantly surprised by how smooth this experience was from the technological perspective.  At all times I could hear everyone.  At all times I could see everyone.  Participants were very accommodating to one another, the judge inviting each participant to contribute in turn and there weren’t any interruptions or people talking over one another.

However, even though I could hear and see the hearing perfectly I still found the hearing hard to comprehend.  I think the best way of me explaining my experience of the hearing is by way of analogy.  When I was a teenager I fell ill with some sort of wretched bug and I missed 10 days of school.  Upon return to chemistry class I found that I’d missed the whole week covering the basics of titrations and I sat in the class trying to apply context and my existing knowledge to quickly get to grips with this new topic. 

It was clear to me from what participants were saying that the young man being discussed had a fairly unique set of issues: references were made to damage in childhood, trauma even indoctrination and that he required a ‘tailor-made solution’.  However, had the advocates been invited to give a short summary of the case and issues to be resolved, as recommended by Mr Justice Hayden, Vice-President of the Court of Protection, this would have considerably helped my understanding.

I think I was left with more questions after the hearing had concluded than before it had begun.  I could see justice being done.  I could hear justice being done.  But, hand on heart, I can’t say I fully understood the justice being done.  The steps being made towards transparency in justice are very positive but there’s still some way to go.    

Olwen Cockell is a dual-qualified speech and language therapist and primary school teacher.  Olwen is based in Kent and has supported children with language and learning for over 20 years.  Since 2015 Olwen has worked as a Registered Intermediary and assists children with speech, language and communication needs when communicating evidence to police and to the courts.

Olwen tweets @olwenc

One and a Half Remote Hearings in the Court of Protection

By Upeka de Silva – 17th June, 2020

The opportunity to observe Court of Protection hearings from the comfort of my own home and learn how the courts are adapting to this new normal is truly exciting.

On 12th June 2020 I requested access to a Court of Protection hearing scheduled for 15th June 2002 which was very efficiently granted together with a Microsoft Teams link. The Clerk to The Honourable Mr Justice Hayden was fabulously organised by welcoming guests and explaining the importance of muting and switching off our devices. Unfortunately, the issues to be addressed in the hearing were not known to me until the hearing had started and as it turned out to be about financial deputyships which I found hard to follow I chose to leave the hearing when they briefly adjourned. In order not to waste the Clerk’s time, I would strongly recommend that a very brief indication of the issues be included against each listing for COP hearings in the Family Division (as they are on the First Avenue House listings).

I persevered and on 16th of June 2020 was pleased to be given access to a different hearing, this time before Mr Justice Williams, also listed without any indication of the issues.  The case was heard again via Microsoft Teams. There wasn’t a welcome or introductory summary of the case to be discussed, but I knew what I had to do as a Public Observer, and the parties introduced themselves and their roles which was helpful. There was an issue with papers not having been appropriately circulated (the judge had not received the bundle) and I was impressed with the Clerk being able to share her screen so that an order from a previous hearing before a different judge was made visible to all.

The case (listed as Case 13155577 Re: M), created a rollercoaster of emotions.  It related to a contact order between a mother (the applicant), a brother (litigation friend) and a local authority care home in which P was currently residing. While there were Covid-19 related concerns in relation to visiting, the primary tension seemed to be about a breakdown in trust and cooperation between the mother who wanted to bring and share lunch with her autistic son and the care home who had refused her admittance for a period. It was heart-breaking to think this had to come to court. On the other hand, Mr Justice Williams maintained unwavering focus on what is right for P and preventing him being exposed to a toxic atmosphere. The hearing lasted an hour, an order requiring both flexibility and stability was granted, and I left feeling reassured that person-centred decision-making, an issue I feel strongly about, prevailed.

I look forward to observing at least a couple more hearings and am grateful for all the tips provided by the Open Justice Court of Protection Project – http://www.openjusticecourtofprotection.org

Upeka de Silva studied law with a focus on human rights and medical ethics. She spent thirteen years working on promoting international sexual and reproductive rights and now works to support people to plan ahead in line with the Mental Capacity Act 2005 at Compassion in Dying. Upeka is passionate about supporting people to make their own decisions about their bodies and their lives and about ensuring that their stories are heard. Observing CoP hearings helps her to see these principles in practice.

She tweets @de_upeka

Welcome to our Blog!

We are delighted to welcome you to the blog for the Open Justice Court of Protection Project.

A key aim of the project is to raise awareness of the work of the Court, and its social impact. Blog posts covering observations by Public Observers, analyses of published judgments, and other social and legal commentary will be at the heart of how we go about achieving this aim.

We look forward to sharing blogs with you as the project develops – go ahead and follow us to keep up to date with everything we share!

Celia Kitzinger

Gill Loomes-Quinn

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